Should I remind her that her sister died?

Grace was upset. Here they came again, these people, trying to move someone into the room she shared with her sister. Hadn’t she already told them? Her sister lives here! They can’t use that bed! Her sister would be back tonight!

Grace’s sister had died a few months earlier, but Grace did not remember that. Unfortunately, the staff was intent on moving someone into her room. It was a census problem for the staff and the management, but it was a moral problem when it came to Grace.

A nurse appeared at Grace’s door. “Grace, look,” she said. “This is your sister’s obituary. See? She’s dead.” Grace paused, looking at the paper. “That doesn’t make any sense,” she replied. “I just saw her ten minutes ago!”

When someone with dementia loses a loved one, why do we feel the need to remind them? The staff needed to let Grace’s sister “remain alive,” and it wouldn’t even take any work on their part. 

I recommended to this group that they actually moved a third bed into the room, keeping Grace’s sister’s “bed” open for her. Either that, I’d said, or forget about moving anyone into that room. It wasn’t worth upsetting Grace in order to increase the census!

Caregivers get really upset when they feel like they are “lying” to their loved ones with dementia. “Well, she thinks that her sister is alive, shouldn’t I remind her that she’s dead?” people will ask me. The answer: no. Why disrupt someone’s happiness so that you can deliver them the “truth” from our world? 

Leave a Comment

Your email address will not be published. Required fields are marked *

Rachael Wonderlin is an internationally-recognized dementia care expert and consultant. She has a Master’s in Gerontology and is the author of three published books with Johns Hopkins University Press. Rachael owns Dementia By Day, a dementia care consulting and education company.

16 things poster
Get the FREE “16 Things” poster!
Embracing Their Reality: Short Film

Learn about our trademarked approach to dementia communication through our award-winning short film.

16 Things I Would Want If I Got Dementia

Get the FREE “16 Things” poster for your personal use—or better yet—your dementia care community’s staff break room!

A beloved classic. Since 2014, Rachael Wonderlin’s moving poem has offered comfort and insight into the world of those living with dementia.

When you sign up, you’ll also receive notifications when new Dementia By Day content is released, helpful resources, and special offers sent directly to your inbox. We’ll never sell your information, and you can unsubscribe at any time.

16 things poster

Special Offer: FREE Poster

Rachael wrote "16 Things I'd Want If I Got Dementia" in 2014 and it's circulated the globe many times over. Download your free copy here!