Tag: hallucinations

Children, Animals, Scary Things: How to handle hallucinations

First, let me say that if your friend with dementia is experiencing hallucinations (seeing or hearing something that isn’t there) they may have another medical issue going on, like a Urinary Tract Infection. However, if their diagnosis is Dementia with Lewy Bodies, or if they have been hallucinating all along, this could be a normal part of their disease process. Hallucinations are different from delusions. A delusion is a fixed, false idea. Everyone with dementia has delusions, such as telling you that they talked to their parents yesterday, even if their parents have been deceased for years. Hallucinations are when someone is hearing or seeing something that isn’t real. They will often talk to or point out the hallucination to others. What do you do? My advice is always the same, no matter the hallucination: see it, too. The most common hallucinations are children or animals, and often these things aren’t scary. I’ve even had people tell me that their loved ones enjoy being visited by little kids, and talk about it fondly.  It feels easy to agree with this hallucination. “Those kids seem really nice,” you may say. However, when the hallucination is scary, most people don’t want to “agree” with what their friend with dementia is seeing. ESPECIALLY if it’s scary, you want to see it, too. The goal is to SOLVE the problem that the hallucination is presenting: fear. For example, if she is seeing a man outside her window that frightens her, tell her to come away from the window while you “call the police”. Don’t actually call the police, but pick up the phone and act like you’re making the call. If he feels like snakes are biting his toes while he sleeps, wash his sheets. Make sure there isn’t a medical condition that causes his toes to tingle. Put socks on his feet. Tell him that you’ll purchase some “snake repellent”.  The goal is always two-fold: agree and then solve. 

Embracing and interacting with hallucinations

It can be pretty scary when your loved one with dementia is hallucinating. Here’s how you need to be dealing with it. Hallucinations are different than delusions: delusions are fixed false ideas, whereas hallucinations are seeing or hearing something that isn’t there. People with certain types of dementia are prone to hallucinations (like Dementia with Lewy Bodies) but others will experience them when they have a UTI or other type of delirium. If your loved one doesn’t normally hallucinate, and is hallucinating, seek medical treatment for them. During an active hallucination, though, you will want to embrace their reality before calling the doctor. No matter what the cause, when your loved one is hallucinating, you need to be able to “see” or “hear” what they are seeing and hearing. Trust me when I say that you’re going to get nowhere if you aren’t on the same page—except into, perhaps, an argument. At one community where I worked, we had a resident named June. June was generally pleasant, although she certainly had a tough side. One day, June’s tough side AND her hallucinations collided to make a challenging afternoon. “Fire!” she screamed. “FIRE! We are all going to die! There’s a fire in the building!” June was moving rapidly up and down the hallways and scaring the other residents. “Fire! Look, look!” Pointing at nonexistent fire, June was determined to get everyone out of the building. This was a noble cause, no doubt, but there was also no fire. “June, it’s okay,” staff members tried to reassure her. “There’s no fire, see?” They’d stand in places where she was pointing. As we know, though, there’s no “logic-ing” people with dementia into anything. She didn’t believe that there was no fire, because she could SEE a fire. June turned to a group of staff members and yelled, “You don’t believe me, but when you hear the fire trucks, you will!”  That gave me an idea. I had been quickly brainstorming about what to do, but June’s outburst solved it for me: I took out my iPhone and searched “fire truck noise” on YouTube. I found a clip and played it, turning up the volume. I slowly approached June and held the phone behind her head. “June!” I said. “You’re right! The fire trucks are coming. Do you hear them?” June stopped immediately, her eyes widening. “Yes,” she said quietly. “The fire trucks…they’re coming to help us?” “Yes, the fire trucks are coming to help us, you’re right. Let’s go sit in a safe area and wait for them,” I suggested.  I gently led June to her room and she laid down for a quick nap. 

People In The Woods.

If you haven’t seen it yet, I highly recommend watching HBO’s documentary, “The Memory Loss Tapes.” It’s a feature length film, but it is worth watching. You’ll laugh, you’ll cry, you’ll be astounded, and you’ll cry some more. The documentary follows people in different stages of Alzheimer’s Disease and documents their successes and struggles. I’ve seen this film many times, but perhaps one of the most salient moments involves a woman who has begun to hallucinate. Hallucinations are not uncommon among people with dementia. Recently I talked to a spouse who had brought her loved one to live at Clare Bridge. “He was seeing people,” she said. “He saw them in the woods near our house, even in the trees.” Although this sounds frightening to someone without dementia, imagine how scary and realistic it would be for someone with memory problems. “He even started to see people in our house. That’s when I realized I couldn’t look after him anymore,” she said. Whenever I hear about cases like this, I think of the HBO documentary. One of the women in the film believed that her wheelchair was covered in snakes. “They’re here!” she’d scream. “They’re all over the chair! One is crawling on me, get it, GET IT!” she cried. One of the Resident Assistants went to her with a tissue and began “squashing” the invisible snakes. The woman in the chair calmed down immediately. “Here, we got you a new seat,” the Resident Assistant said, transferring her to a different wheelchair. Without the aid of medications, the best thing that you can do for your loved one with dementia is to understand the fear that he or she is coping with. Imagine how terrifying and frustrating it would be to hear someone say, “There’s nothing there. You’re seeing something that’s not real.” The Resident Assistant in the documentary did a wonderful job of embracing her resident’s reality and solving the problem.

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Rachael wrote "16 Things I'd Want If I Got Dementia" in 2014 and it's circulated the globe many times over. Download your free copy here!